Our newborn son has been officially diagnosed with PHACE Syndrome, it's a very rare genetic disorder that can have many different traits and symptoms. Unfortunately there's not one singular test that can be done to check all of the boxes. After months of tests, we finally got the results of our son's super rare genetic disorder. To add to this monumental day for us, it also happens to be Paige's birthday! We have loads of fun playing with bubble guns, opening presents, and celebrating this incredible day.
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